Saturday, May 7, 2016

Sleepy American: Civil War

In regards to those fellow persons with Narcolepsy whom are against our advocacy of correct stereotypes in regards to our disorder, and wish I do absolutely nothing in regards to Jeremy Renner's joke at our expense, I will press on. I am not horribly hurt by most insensitive remarks about Narcolepsy. We are on a mission to protect Narcolepsy Newbies from hearing such remarks... a child, teen recently or not yet diagnosed youngster. Society has a responsibility to protect our children, teens. Many are not even diagnosed, nor does the majority experience cataplexy, know what it is, nor do they know to associate such with Narcolepsy. The world only knows us as casual spontaneous, sometimes lazy nappers. The world really needs to know Narcolepsy is More. We're Team Sleepy... More than a decade est. on Myspace Strong. Choose your Superhero name ;p the other pwn team calling us crybabies are team Snoozy! Sleepy American: Civil War

I understand hopelessness, even at one point summer of 2010 I was waiting for my liver to explode and die... I was 29 and begging for help removing a cantaloupe sized Hepatic Adenoma from my liver. I begged and begged for a 400k surgery for a very rare liver tumor caused by female hormones. Esp. for my age, I have been thru the wringer, suffered horrific emotional pain when my now ex-husband abandoned me 2009 only a week from eviction, as well as physical pain from multiple health problems, several chronic: Severe Narcolepsy with all profound tetrad symptoms, ie extended cataplexy-induced sleep paralysis with Hypnagogic hallucinations is typically a weekly or more occurrence(6-7pm yesterday most recently), Fibromyalgia, Rheumatoid Arthritis, Diabetes type 2, ., Mitral Valve Prolapse Syndrome, Clinical Depression, regular Panic Attacks, chronic Hepatic Adenomas(2 liver resections), Urinary Incontinence...its overwhelming to explain, let alone experience.


Every social movement comes across obstacles. Mainstream used the n word referring to African Americans, and now I almost never that word on Television, movies. PC is to protect those most hurtable... kids, newbies. It's the right thing to do. Old trick are difficult to transform, evolve. God carried me thru the worst part of my life(2007-2010) to the season of life I lead now.


Narcolepsy network advocacy challengers short of the sight we are fighting for the same things-educating the masses so that someone who is experiencing cataplexy, sleep paralysis, hypnagogic hallucinations- severe intruding onto their life-- lives on for years convinced they are going crazy, and as a result never get a correct diagnosis until their middle aged. Who have seen Narcolepsy constantly portrayed as a Magical fairytale nap land of spontaneous restful sleep.

Narcolepsy is not a Super Power. Narcolepsy; however, does shape our character via challenges,empathic understanding, patience,hardship,etc. Super Heroes as Individuals, oh YES we are! Wednesday, while a guest on Live! with Kelly and Michael @KellyandMichael Jeremy Renner @renner4real was wrong to say Narcolepsy sleep attacks are a Superpower he wants. Cancer is not a superpower to dream of getting... but persons bravely fighting cancer? huge superheros.


Sleepy American: Civil War.... Let's wave the white flag before one of us dies from a cataplexy fall.

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