Sunday, April 17, 2016

Add Narcolepsy as a qualifying condition to The Social Security Blue Book



Add Narcolepsy as a qualifying condition to The Social Security Blue Book

Hidden Character Treasures

I think my life with narcolepsy has ingrained permanent character traits rarely achieved by those with a normal life. I gave up driving at 23 because my cataplexy was so severe, anytime I tried to stay awake at red lights, my foot slipped off the brake. What young adult gives up so much without a disability? Poverty? I see selfish idleness all around, one example are US politics.... much to do about not much circus drama..... They have NO idea the hardships. I love how empathic I have become, how I enjoy the simple things so much more, how I experience something I cannot explain easily. I love more, tolerate excruciating physical and emotional pain, but still find joy.

Friday, April 15, 2016

Trapped inside Myself~ Original Song- Progress up to 5/29/2016



Trapped Inside Myself

RACHEL DAWN NESMITH·SUNDAY, MAY 29, 2016

I wake at night,
Unable to scream or fight.
What do I do
When the numbness plights
As the terror escalates,
The monsters come celebrate.
My fears unreal,
But why does it feel like this?
So take me into another world,
A place I can be
Free at last,
Where I can even stand up
And Laugh.
So Pain will become a mere memory...
No one Understands me, because....

Chorus***
I’m Trapped Inside Myself,
I Can’t even break free.
My mind plays tricks,
If even for a little bit,
Been kicked to nothingness.
I’m Trapped inside myself,
Escaping is everything,
I can resist,
If only for a little bit;
My dreams are pillaged.
I’m Trapped Inside myself
**Chorus**

Nobody Around Understands,
I can’t get off,
This runaway brain train.
I once controlled