Doubters, Judgers, and Unsolicited Advisors: Civil Coping Approaches to set the Record Straight about your Chronic Illness

Sleepy American's Empizer... Strikes Back! 

13 Perfect Christmas Gifts for Chronic Illness Warriors

Happy HoliDAZE! Such a busy, happy, fast-paced time of year, when well person's often get exhausted from the todo's and festivities. For Me, Christmas is wonderful, joyous, but also a messy, difficult, anxiety-triggering, sleep-paralysis nightmare come true. I have severe Narcolepsy with Cataplexy, Sleep Paralysis, Hypnagogic Hallucinations, Fibromyalgia, Rheumatoid Arthritis, Depression and Anxiety, as well as Restless Legs Syndrome. Therefore, I am always in significant muscular pain, and often blindsided with a feeling of not sleeping for a whole week, often consciously paralyzed for an extended time during the week.

Most of our loved ones and the general public have no real understanding just how difficult and utterly exhausting simple life tasks are , as well as the spoon debt which skyrockets proportionately to holiday parties, decorating, seeing and chatting with people whom assume I'm not looking sick enough. I do love this time of year, this is the Christmas my Savannah is so excited about! The lights, the trees, the toys!~ She wears me out!

If I could get presents from Santa for being a good patient superhero advocate, I really want these awesome chronic-illness friendly Christmas/ anytime Gifts!

1.Nap Cave: a room exclusively dedicated to slumber/recharging our 'batteries' Complete with blankets, couches, hammocks, cots, sleeping bags, daybed, bed, air mattresses, etc. As well as blackout blinds, white noise player, eye masks, etc.

Sleepy American's Nap Cave

2. Daily Full Body Sports 2 hr. Massage session to lessen the severity of muscular rigidity, pain, cramps, tears,etc. My Fibromyalgia pain leaves me helplessly drowning in intense charlie horses in my legs, glutes, back, shoulders, neck, etc.

3. Comfortable and Fun sleepwear, PJ's, as most of us with invisible disabilities live ready for bed,I mean kick butt... at the drop of a hat! This Nightshirt is Sleepy American's favorite to fight negative mindsets and misconceptions regarding invisible disabilities....

4.  Inconspicuous hidden Private napping place. Options include a sleeping bag- stuffed bear disguise and  a nap pod~ The Tranquillity Pod

5. Top of the line electric pulse(pro tens units) massager with many replacement adhesive pads.

6. More and better sleep: restful, uninterrupted, with NO Sleep-paralysis nor Hypnagogic Hallucinations. A full week of 8hrs continuous normal sleep wake cycles. Now in Phase 3 Clinical Trials is concentrated Xyrem, a drug which currently makes patients take 2 or 3 doses a night. By Putting Sodium Oxybate in Micro Pump Form, Avadel Pharmaceuticals is getting me closer to a good normal nights sleep.

7. Jacuzzi or Spa to ease tight muscles and relieve pain.

8. Fulfillment and Self-actualization as Sleeper of the House, Sleepy American to become widely known as a champion expert patient advocate and activist for Invisible Disabilities and Rare Disease. Narcolepsy and Fibromyalgia took away so much so early in life, I never got the chance to fulfill my dreams of becoming a Psychologist.

9. A self-driving vehicle which runs on clean energy, solar, and operates using GPS. No more cabin-fever, bumming rides from dear ones, better self-esteem and productivity as a citizen. Independence, dignity regained. Safer roads, happier lives. Transportation to get things done and introspect on my life, pain, and missions, as I have not been able to drive since 2003.

10. To write a book about my incredible life journey: from starving without medications to Superhero, Sleepy American/Sleepy American Heroes! The energy,quite time and finances to make writing my story in it's entirety in one book a reality.

11. The ability to expertly draw and illustrate effortlessly. I can write, I can create music, I only wish I could drawn beautifully.

12. Brand new custom designed and made Sleepy American costume wardrobe for each day, occasion as I see fit. Some PJs, easy lounge wear. a few formal, business casual, etc

13. The Real Life ability to Empizize, using my superpower to transfer real memories and experiences with mere touch.  For our family and friends, strangers often have never ending supplies of unsolicited 'expert' advice, panacea
magic cures not based in medical findings and research, the Empizer instantly corrects their way of thinking making them experience your or another's real life symptoms, life experience, etc.

         Sleepy American EnLightengs Judgementals, Unsolicited Misguided Advice

15 Amazing People With Real Superpowers

From You Tube Description:

The world of comics and movies is full of superheroes and characters with abilities that transcend what is possible for the typical person. We enjoy these stories because we can escape our reality and imagine what it would be like to have amazing powers of our own. Yet, a gifted few in this world don’t have to imagine because like the superheroes in comics and movies, they too have extraordinary powers beyond normal humans.

Here we will look at a selection of real world people with remarkable powers and abilities that surpass those of us mere mortals.

Author: Brent Swancer

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List

10. Bajau Laut: Last Of The Sea Nomads - Aqua Humans/ Aquaman

09. Slavisa Pajkic - The Electric Man / The Battery Man

08. Kim Peek -The Real Rain Man / Mega Savant / The Walking Google

07. Masutatsu Oyama - The Godhand

06. Isao Machii - The Jedi in the Matrix /Superhuman reflexes / The Modern Samurai

05. Dean Karnazes - Ultramarathonman / The Human who can run forever / super endurance man / The Real Flash

04. Daniel Browning Smith - The Rubberboy / World's Most Flexible Man Alive

03. Wim Hof - The Iceman / The Real-life Iceman

02. Veronica Seider - Smallest visible object | Guinness World Records / The Woman with Incredible Vision

01. Michel Lotito - Mr Eats All-Even Metal

5 more real Superheroes!  From youtube comics, From Description

Some superpowers go beyond the comic books and movies.

Executive Order a Cot in Our Quarters

"Instead of Invading Iraq, we should've taken a Nap.  Tempers flare, when sleep is bare. Executive order a cot in our quarters, even for Congress, there's a Nap for that." ~Sleepy American

Why I am so happy the House passed the 21st Centuries Act #CuresNow, I just might collapse from cataplexy! If we work together, we really can put our nit-picky idiosyncrasies aside for the greater good of humanity. Yes, I have narcolepsy, and MUST talk several daily naps and lots of hardcore prescriptions to comfortably exist, but Naps make EVERYONE healthier, more productive, happier, more compliant, cooperative, and less stressed. Speaker Paul Ryan even has a cot in his Congressional Office, so he can sleep, nap when going home isn't feasible. Thanks House of Representatives!

Yes, the rumors are true, I have been appointed by President-Elect Trump as Sleeper of the House. The government will only pay $600 for me to go to Capitol Hill during Rare Disease Week, 2017

#RareDC2017 @rarepov @RareAdvocates Thanks House of Reps #CuresNow I accept @realDonaldTrump 's nomination as #SleeperOfTheHouse #narcolepsy

"Keep, ancient lands, your storied pomp!" cries she

With silent lips. "Give me your tired, your poor,

Your huddled masses yearning to breathe free,

The wretched refuse of your teeming shore.

Send these, the homeless, tempest-tossed to me,

I lift my lamp beside the golden door!"

Faith Bigger than Fear is Vital to Surviving Chronic Invisible Disabilities

Let your Faith be Bigger than your Fear.  Nothing is too big nor impossible for  Our Lord.~ Sleepy American

I (SleepyAmerican) have a lot of experience in being a Narcolepsy and Fibromyalgia Healthcare advocate. My Narcolepsy is severe case of all the Auxiliary symptoms, as well as multiple health conditions, & some of the darkest most 😖 MySpace PWN groups we started and 2 YouTube Awareness/real sleep paralysis vids were my contributions to awareness circa 2006-7.  2003 I gave up driving, I still get significant cataplexy when sleepiness hits, and esp. if I fight to stay awake /wake up. It takes me a while to feel safe to stand when someone pokes me awake. June 2005 I married my long time boyfriend, as he finally got employer benefits. Two months later, His employer dumped all insurance coverage except a crap indemnity plan.

Experiences anyone could have experienced. I lost my ex-husband as he abandoned me in 2009 with absolutely nothing A week from eviction. While with him I had no health insurance yet in my sleep doctor was kind enough to help me with pain patient assistance programs which I had to apply for each one and I take more than just Narcolepsy meds I was trying to get 10 of them before I could get disability. I had to go without gabapentin for my fibromyalgia which left me in horrible pain most the time we went hungry we lost our house to foreclosure, filed for bankruptcy a lot of it was medical. It's the lowest point I had ever gone in terms of emotionally. It really was a cataplexy tornado.

My parents saved me from homelessness. A friend of mine taught me how to file for a free low-cost divorce because I cannot wait to get my last name back. In August 2010 I am most died from a cantaloupe sized Hepatic Adenoma on my liver. I very nearly almost didn't see the age of 30. In 2011 I got a scholarship to my second narcolepsy network conference in Las Vegas which I clearly subtitled my Divorce-moon.

These past seven years I've rebuilt my life. I have a much happier life, though finances and formulary RX changes lately have been a bump in the road. They mess with the Effexor XR generic and 💥 I'm on my backside in extended sleep paralysis. I am a mom of a two-year-old in my take care of her full-time. I went through the pregnancy wondering if/how I could have so many health problems. It amazes me that my broken body could create this perfect little girl intact with all the hypocretin neurons she needs.


My family has been very supportive of the Narcolepsy since I onset severely September 2001. Of the worst things I have experience with Narcolepsy it would be insurance coverage, drug coverage. I knew there was something going on with this sleep thing when I saw cataplexy I knew that that's what I had and my grandma put it altogether and said I think she has narcolepsy. So right away I go in and like Dr. this is what's happening I need a sleep study OK here you go here's the sleep study. oh no roadblock: My mother's health insurance that I was on completely excluded sleeping disorders that means no diagnosis no treatment. I didn't get my sleep studies until February 2002 and of course it was the narcolepsy.

 I would love to hear how you know what it's like to be at your lowest but still come out on top in the end. My Faith in The Lord carried me at my lowest parts of my life, and at times I could have given up hope, as logic and the world say so. Nope, I held on tight to God... that I would find a great man, more stability, and a family (Savannah Diane 's been my daughters name for 15yrs). Thank you, Jesus, for your blessings and angels lighten our load, sadness, pain, and amplify our joys, victories, and smiles. Thank you to all my online and in person family and friends for being by my side in the times of triumph and troubles. Amen.  ~Sleepy American