One woman with Narcolepsy with cataplexy, Fibromyalgia, Rheumatoid Arthritis, Diabetes, Depression, & Neuropathy leads a team of superhero advocates with bravely bringing Invisible Disabilities to light, busting inaccurate stereotypes, Empizizing the masses (her superpower) to inspire empathy and combating ableism everywhere. Unleash your inner superhero!
Saturday, October 29, 2016
Sleepy American Heroes S01E02:Cindy Vs. The Huffle Puffle
Something weird is going on with 3rd grader Cindy... she is always in a sleep haze even when she gets a full nights 'sleep'. Everyone things the Huffle Puffle is a bad dream, but Cindy knows this monster is Real and torments her every night in her bed... she cannot fight, she is unable to move. Then suddenly the buzzz of paralysis lifts and poof the Huffle Puffle disappears. When she laughs or gets frightened at recess, her knees and body give out, face droops, and her friends worry and try to hold her up. Where is Sleepy American to solve this scary mystery for Little Cindy and all whom love her?
No Authority
Unless you experience bone breaking Cataplexy,
Unless you have Hypnagogic Hallucinations couple with Sleep Paralysis....
Whenever you close your eyes...
So Afraid to sleep, so afraid you are Dead, So afraid you are in Hell...
You have no Authority concerning MY Narcolepsy with Cataplexy.
~Sleepy American
Unless you have Hypnagogic Hallucinations couple with Sleep Paralysis....
Whenever you close your eyes...
So Afraid to sleep, so afraid you are Dead, So afraid you are in Hell...
You have no Authority concerning MY Narcolepsy with Cataplexy.
~Sleepy American
Friday, October 21, 2016
NarcoCon 2016- Assemble Sleepy American Heroes
Only the Biggest Slumber Party of the year! Join Our Invisible Justice League because you are a true Superhero. Sleepy American fights negative stereotypes using my Empizizer which I instantly make a bully or anyone feel what any person experiences. It's my honor to Assemble my Sleepy American Justice League! Join my team! http://www.SleepyAmerican.com https://youtu.be/N67pwnbF0IY #Nnconference2016
Monday, October 17, 2016
Our SMALLLEST Justistice League HEROES are Our BRAVEST
"Sick isn't weak" an awesome AD shows the strength of our smallest Sleepy American Heroes- INTERNATIONAL LEAGUE, SICK KIDS, CANADA #Cancer #cysticfibrosis #autism #kidneyfailure
Thursday, October 13, 2016
Costco Saved my Life!
Chronic Illness, expensive in every sense of the word: Financially, Socially, Emotionally, Devastatingly so. Narcolepsy with Cataplexy, Fibromyalgia, RA, Diabetes, Restless Legs Syndrome, Chronic Hepatic Adenomas, High Blood Pressure, Postpartum Anxiety and Panic Disorder, Depression, double profoundly severe Carpal Tunnel Syndrome both fingers to elbows... I am a burden to my family, the state, but a cash cow to the Health Care Industry and Big Pharma. At least I feel that way often.
Recently, my health insurer, Superior Health Plan's Formulary, run by US Scripts has restricted my Generic Effexor XR to only Half of what I need , In Addition, Superior Health Plan via NIA Magellan has extremely difficult access to procedures including imaging and minor to major surgeries even with say many liver tumors. The past month I have been stuck... stuck in pain, cannot find a neurosurgeon to operate on my wrists with profoundly severe carpal tunnel syndrome, stuck in several hours of Sleep Paralysis with Inception on Elm St. realistic Nightmares for 1-2hrs. at a time.
Sleep Paralysis with Inception on Elm St. realistic Nightmares |
Exclusions;means there is noway the insurance company will cover said benefit, as in no more Modafinil come March 2017 this will become my reality. I have a heart condition which prevents me from taking other stimulants, as in Ritalin nor Adderal. Nothing else is left but Provigil and its Generic, Nuvigil and its Generic. Nuvigil is newer than Provigil, excluded as well.
Modafinil 200mg tab
Venlafaxine ER 150mg Cap
Costco, I am so thankful you pay your employees well, and give them days off, like Thanksgiving! In addition, you still make a profit, but have a social consciousness above the rest of US retail. From $259.00 a month at Walgreen's for 60 150mg Generic Effexor XR , Costco charged $25.39. When my insurance stops covering 60 Modafinil 200mg, I will pay $64.90 vs $1800.00 at Walgreen's. You don't even need to join Costco to buy prescriptions, they are friendly, nice and take their time to transfer your medications, as well,. I feel like I am getting back to myself, that I can shut my eyes without fearing death or danger, that I can laugh and not bust my knees as hard or break a foot.
Stay Well Thank you for cheering my Team of Sleepy American Heroes as we battle not only damaging stereotypes but also fight for fair, affordable and quality health care for invisible disabilities, as we are often incapacitated even before reaching adulthood thru no personal fault of our own. I am here to support you
Yours truly, Sleepy American
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