Paralyzed, Attacked, and Suffocated

Two of my severe Rem Sleep associated narcolepsy symptoms are the most confusing, terror filled nightmares come to life and Sleep Paralysis. Still, when I fully 'awaken' or get out of the life gripping hold of sleep paralysis,I have learned to is never underestimate the destruction and problems Full Tetrad narcolepsy entails.Even on my medications to control cataplexy, sleep paralysis, and hypnagogic Hallucinations, my boughts of conscious paralysis and dreaming nightmares come to life in a limbo purgatory between sleep and wakefulness. I collapsed into bed right after taking my first dose of Xyrem at midnight last night when my eyes were closed and dreaming, but I could feel my bed hear sounds of the fan. Unable to move and barely make a peep, I was running for my life in my very realistic nightmare full of twists and turns like Mission Impossible.

Often my hypnagogic hallucinations/realistic half awake dreams last an hour or so, personally leaving me very confused as to which world is real... or are they both real(dream vs. reality). I felt the fear of getting caught by a menacing predator meaning me great harm. I was running fast, violently ... when at 3 am Friday I was awakened very suddenly while being hotly pursued by my enemies by a feeling of being thrown or falling from 5 ft directly onto my left knee exploding in tear jerking pain and a garbage bag being thrown over my head (to suffocate me). 

Coming to terms as to what was real vs. hypnagogic hallucinations/nightmares crying in the real pain of waking up falling out of bed onto my left knee. Kerry helped remove my bedside trash receptacle from my head, and assured me I wasn't in real danger. The pain in my knee was too much to stand on at first, so I fell asleep with the lights on on the floor for an hour, then took some Effexor and Xyrem, and finally got a little bit of restorative sleep for about 3 hours. I awoke to Savannah wanting breakfast and love.

Really experiencing fear, injured knee, and having a real trash bag thrown on your head, seriously would scare anyone, and in combination with a serious sleeping disorder which blurs reality and the nightmare/dream realms, understandably would strike fear into the minds and hearts of the toughest of humanity.

What are your most horrifying experiences with Sleep Paralysis, Hypnagogic Hallucinations, and/or Nightmares/Terrors? How did/do you cope and make peace with such an enigmatic autoimmune neurological disease (Narcolepsy)?

How Hollywood Gets Narcolepsy Wrong

Rat Race
In true Narcolepsy, we feel the sudden sleepiness of three days without sleep, which gives us a heads up as to the fact we need to nap soon, hence rarely do we ever fall asleep actively in movement.... However, Cataplexy leaves us consciously paralyzed brought on by strong emotion like laughter, anger, surprise, and for me.. fighting a sleep attack is the symptom which most Hollywood portrayed narcolepsy sleep attacks which are really cataplexy... In which we are concuss  of being paralyzed, feels like pins and needles all over... can last very long time for myself, shorter for many.


GIFSoup


Deuce Bigalow
We all remember the poor girl with Narcolepsy on a date with Deuce Bigalow, but a few misconceptions and exaggerations must be communicated throughout society, because so many are suffering with narcolepsy but fail to match  their symptoms with all of narcolepsy's. If we are super sleepy and fall asleep in, around my food,I wake-up upon impact...messy food in my hair, face. Or the pain... of  a micro sleep blasting me awake with a cataplexy,micro sleep hypnagogic jerk busting my knee's or the permanent line on the bridge of my nose due to micro sleep.
If I were to micro-sleep in my plate, esp. hot soup... you better believe I'd wake up and jump 3 stories high.



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Recently Jeremy Renner stated he wished his real super power was Narcolepsy.... Narcolepsy is not a superpower! I would not wish this on anyone.... Narcolepsy is much worse than spontaneous luxurious nap naps.... So you just fall asleep instantly anywhere, no notice and the same cataplexy? what kind of fool word is that.... where all the cats lie on the landing? I wish I could be so lucky to nap anywhere all day! I'm probably kinda narcolepstic, cuz I get tired too... ORLY..... I remember when I used to just get tired...Now I just stay there!




I get snarky, sarcastic really make em feel like the idiots they are... ahhhh so intellectually satisfying... like a snickers while I snicker...... eg... Well that can be arranged.... you can take enough Belsomra to take narcolepsy for a test drive or the more permanent cauterization of your Hypocretin Neurons....we can make your dream of becoming one of us true... today!

REAL Narcolepsy is NOT spontaneous fairytale naps- more like being waterboarded on Inception Living on Nightmare on Elms St. #narcolepsy

This is what it looks like to you when I have Extended Sleep Paralysis with Hypnagogic Hallucinations.

This is what is what I experience are very real behind my eyes.... Inception on Elm Street

I usually get this overwhelming sleepy feeling, like I haven't slept a week .... giving me enough warning before I go into 'NarckyHeadBobble Snoggz 'Nightmarish seemingly never-ending cycle of horrific subconscious torture...


Video about a person with Narcolepsy about as severe as my Case,  Very Accurate. The difference is I take EffexorXR and Xyrem which help decrease Cataplexy, Sleep Paralysis, and Hypnagogic Hallucinations.

Cataplexic Wisdom learned by the pain and damage to my body due to Cataplexy falls...

Join the Narcolepsy World Map!

Partnership for Prescription Assistance is Here to Help!

Thanks to the Partnership for Prescription Assistance so much for your help. You help so many during the toughest times. I once could only get several 3 of my 15 Prescriptions through through the individual manufacturers of my prescriptions via the Partnership for Prescription Assistance: Xyrem, Abbot, Neurontin, GSK, NORD and Wyeth.The Partnership for Prescription Assistance is even now providing assistance for actually seeing the doctor, medical tests, etc. 

According to The Partnership for Prescription Assistance's website:
 "Our mission is to increase awareness of patient assistance programs and boost enrollment of eligible individuals. We offer a single point of access to more than 475 public and private programs, including about 200 programs offered by biopharmaceutical companies. We've helped millions of Americans to get prescription drugs for free or at very low cost drugs."

This is Especially beneficial for the young disabled population waiting for Social Security Disability to be approved usually at the Administrative Law Judge which takes about a year to three years. Back in 2009 when my exhusband left, I could not afford uninsured Dr. visits, one of my doctors works with me, the others will not budge, I, was and still am on some degree- one of America's Forgotten, suffer as a and we suffer as a needless consequence.

Also Check out Needy Meds

Look at Caring Voice Collection for assistance in paying for Medications. 

Neurobiology of Sleep and Wakefulness

What is Narcolepsy Like, Mommy?

Metamorphosis: Memes -Tasered by Sleep/Wake Twilight Zone