Monday, September 19, 2016

Condo on Elm St.Priced for Quick Sale $70,000 10,000sq.ft.

Chronic, Invisible Illness since the age of 19, Prescriptions Drugs and Routine Care have kept me Semi-Functional, in that I can feel safe when during the following:

1. A sleep attack forces my eyes to close (extremely severe in length per episode, severity of episode and frequency of SLEEP PARALYSIS AND HYPNAGOGIC/ HYPNOMYOPTIC HALLUCINATIONS),

2. I feel emotion a little as extreme sleepiness, empathizing with fictional character, real character, thinking up a witting comment, humor of any degree or kind, anger, surprise, fear, panic, PAIN, etc. (extremely severe CATAPLEXY),

3. Something Stresses Out / Triggers a MAJOR DEPRESSION EVENT (like my current fear of spending hours each day involuntarily quadriplegic~ via the above REM paralysis states above), and when

4. I Battle EXTREME MUSCULAR AND JOINT PAIN driving my cataplexy, sleep paralysis, clinically significant Depression.




My health is significantly impaired when and if I experience a lapse in my Prescription Medications, usually due to bottom barrel funding of Managed Medicaid for Star Plus in Texas, I become a virtual invalid vegetable... I look like I'm dead, but I'm consciously awake on many levels of existence. I can hear, see if eyes open, feel, smell, taste, but it takes me 15-30min to finally break free from Narcolepsy's Powerful REM Paralyzing grip on my brain.

I have taken this regimen for over 1 decade, ten years~ for Narcolepsy: cataplexy, excessive daytime sleepiness:

1. Xyrem- 3 doses nightly of 4g each
2.Effexor xr- 300mg night (2 150mg)
3.Modafonil 2xD 200mg

Superior Health Plan, a managed HMO plan for disabled person's is a Star Plus Medicaid plan, and suddenly I find I cannot get a refill of Provigil nor Effexor, because only one pill each drug is allowed as of September 2016! I am out of Effexor XR 150mg caps completely, and that alone is horrifying for someone with as severe Narcolepsy with hours of sleep paralysis, hypnangogic hallucinations as I. My insurance has always refused to cover my dose of Xyrem,so  I am put back on Xyrem's patient RX Assistance each year. Now with my mediations in limbo, terror of impending conscious  coma is on countdown, against this Prior-Authorization Monster.



So whom the HECK has the ace in this HealthnotCaringMuch deck?
Definitely not the Patient, Nor the Doctors, it's Third Party Health Insurance. Yes, I am on Medicaid, but unlike Medicare, Medicaid is now largely contracted to ....you guessed it... Third Party HMOs whom make profit with TAX Payer funds to deny our (TX) states' most vulnerable, in need, impoverished, legally and medically incapacitated and disabled populations essentially without a crutch to help us stand.  Then cut cut cut our lifeline each session every turn, and no specialist wants to accept such a small fee for service. Thank you TX for making a profit for Superior Health Plan by denying me the ability to laugh and not break bones, etc. Soon, my hands will not even be able to type, because I cannot find a neurosurgeon to treat my severe double arm and handed CarpalTunnel Syndrome.


This week has been a terrible Fibro Flare, feels like all over Charlie Horse cramps, recurrent UTI's and Fungal infections I am trying to beat, but it is clear that Sleepy American must triumph or person's with invisible debilitating illnesses will never gain the civil rights we deserve just as much as the elderly.  Medicare is so much better than Medicaid... no contracts to third parties... a purely national program, except part D. If I could have worked as a teenager, I would be on SSDI/Medicare, but unfortunately in 2002, I had been in school like my folks wanted, my narcolepsy onset so hard, I was KO for months begging for diagnosis, as my insurance Excluded Sleeping Disorders medically insignificant, despite part of my brain slaughtered by my autoimmunity. Medical SOS: Attacked by the PRIOR-AUTHORIZATION  MONSTER


Have you ever been attacked by the Prior-Authoization Monster? How have you managed? Together we can get the greed out of Medicine. Cut the profit from the deniers... The Doctors, the patients, yes they are the only one's deserving a place at the dictating treatment options. Why do we allow business degreed insurance employees determine our most vulnerable's fate?  #SleepyAmericanHeroes

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