Sleepy American has Narcolepsy, but that's Not My Superpower

@renner4real There is only One Sleepy American-- my Empthizer instantly causes one to really feel what another experiences through advocacy, snarky sarcasm, and analogies. #narcolepsysuperhero

A photo posted by Rachel Nesmith (@sleepyamericanhero) on May 14, 2016 at 12:45am PDT

My superhero Narcolepsy Advocates and I stand up to the Media's Inacceptable Portrayal of Narcolepsy Out of Love for the 1500 Undiagnosed, Newly Diagnosed, as well as Vulnerable Persons With Narcolepsy in the USA. The navy seal advocates I belong to got the Narcolepsy Network community and organization to realize this opportunity. The opportunity to re-educate the world. we hate terrible stereotypes, we must change this so that no more young folks onsetting and oblivious to why they cannot remain upright or standing with laughter, or why they experience alien attacks and abduction, torture by ISIS thinking they are going nuts when in reality its the always abandoned on narcolepsy media puns cataplexy, sp, and HH.

We were not boo hoo hurt by CaptainREMmer's comments, but annoyed that this is still going on. At least my approach is to inspire empathy with snarky humor and transformative analogies(Inception on Elm St). This movement is not just to re-educate mainstream America, but more importantly help people whom fail to associate Cataplexy, sp, hh as symptoms of narcolepsy. They blow off there EDS as sleep deprivation, exhaustion from school,work ,denial,etc. I was so lost and confused re cataplexy in 2001. For a full two months after realizing I had a sleep paralysis major problem and experiencing my knees giving at laughter.... I was terrified and ignorant, searching online for answers until I came across the definition of cataplexy and that its exclusive of narcolepsy on a sleep paralysis site.

I honestly don't need an apology, just the media to get our wake up call. My tweet helped NN realize what was going on. I love our Advocacy Team -SpecialOpps: Sharon Denise Remo Stu Carpenter Michelle Hernandez Viv M. Reese especially worked hard to get this done. Sleepy American is my real online name, and I live for advocacy and empathetic re-education. They are always looking out for all of us. It's not out about being hurt or super angry, it is About Time mainstream media Did Narcolepsy Right!

The Tweet which alerted Narcolepsy Network to Respond #narcolepsyisnotasuperpower

For me its what the world sees in real life as experience narcolepsy vs the crazy paralysis symptoms...and hallucinations shown in the mirror.

Hey fellow people with narcolepsy, I'd like you to join me in making a point. Narcolepsy is a real condition affecting real people, and I think we'd all like an apology from Jeremy Renner following some ignorant comments. So please help to raise awareness by taking a #narcolepsysuperhero pic (or tagging an old one) and show them what having this particular "super power" really means 😴❤️ . #narcolepsy #narcoleptic #sleepdisorder #sleep #sleepy #invisbleillness #chronicillness #spoonie #respect #educateyourself #awareness @remrunner @project_sleep

A photo posted by Falling Asleep (@falling_asleep_elle) on May 13, 2016 at 10:34pm PDT

Real Superheros with Narcolepsy

As Sleepy American, apart from re-educating the mainstream with co-advocates, I use my EMPATHIZER to not only project symptoms of Narcolepsy like cataplexy induced extended sleep paralysis, but also all other invisible chronic illnesses. Or so the fantasy goes... We have to find humor and ways, as well as opportunities to start the conversation, such as Mr.Jeremy Renner's comments. REAL Narcolepsy is NOT spontaneous fairytale naps- more like being waterboarded on Inception Living on Nightmare on Elm St. #narcolepsy

We are still waiting for an appropriate response by Jeremy Renner, Live with Kelly and Michael. On Monday, Jimmy Kimmel is Kelly's first guest coHost. I have reached out to Kimmel(PWN) to do Narcolepsy right while on the show. To the short list to Real 'PWN' Superheros, I would definitely include Sharon Remo, Stu Carpenter, Michelle Hernandez, and myself whose collective first response efforts grabbed the attention and inspired action by the Narcolepsy Network. Our collective efforts are desiring for a full representation of the symptomatology of Narcolepsy. Granted my humor is a big part of style, it is meant as an attention getter, but mostly a small comfort for us PWN unified by our cause. Viv M. Reese is heading a campaign re-educating a horrendously incorrect segment, including a doctor's appearance, on a morning show in her Costa Rica. She is a true trailblazer!

 The Very Inaccurate Clip Viv Reese is heading Costa Rica's Narcolepsy Awareness (Spanish) 

It is amazing some PWN can work and drive, PWN like myself simply don't know your world. Our best foot forward usually involves more brief moments of lucidity in daily life, followed by frequent cataplexy, sleep paralysis with or without Hypnagogic Hallucinations. For us battling severe narcolepsy and cataplexy(my biggest being laughter and fighting sleepiness) as well as other chronic illnesses is a huge obstacle to getting anything achieved. Medications have helped lessen the severity of my cataplexy, sleep paralysis, but not the frequency of its incidence... instead of breaking a foot, I slam my nose. For those like us, our passion, our job is Narcolepsy, Disability Advocacy. Until Cataplexy and Sleep Paralysis are part of our stereotype... Keep Pushing!

Want Narcolepsy as a Superpower?

If you really want my "superpower", we can make your Dream Come True!!! Temporary or Permanent Narcolepsy and All our wondrous 'superpowers"? Temporary? Stay up 72hrs... absolutely NO sleeping allowed NO napping no snoozing no fantasizing about sleep....Now the fun begins... Take 20 Belsomra's every 4 hours over the next week, remember...no napping during the day or we will poke you each head bobble... Mid week under this regimen, the jokes will come...can you take Cataplexy, or are you not strong enough for Cataplexy? Oh can you hear us laugh how you just passed out asleep? Even Though you are fighting conscious paralysis trying to yell at us now you can hear all we say? Oh, no Jeremy Renner..,.. why stop now when OUR fun has just begun???

If you truly enjoy your test drive brought to you by True Super Badass Superhero Advocates with Narcolepsy, you can purchase your Superpower of choice for the discount bargain price of 15yrs of your vitality and our on site Neurosurgeon will remove or cauterize 80,000 Hypocretin/Orexin secreting neurons in the posterior and lateral hypothalamus. Once we remove your sutures post healing following neurosurgery, you are now in possession of a formidable superpower! Don't you just love being stuck in realistic nightmares unable to move or scream but aware of your inability to move? Aww now you, too can experience #our narcolepsy spa experience!

An Advocating BADASS and TRUE SuperHero for persons with Chronic Invisible Illness! (Sleepy American) *** Via Empathic Understanding, Hardships, challenges, loss, and more loss and sad times.... I have used to build me into the amazing person I am now.

Trade narcolepsy with different ailments, and repeat the substituted disease with REMmer's ignorant statement... Mike asks,'If you could have a super power, what would it be?" REMmer replied with a smirk,"I think I want a new one. What is it... ca...can..." Kelly Rippa,"Cancer" "Yes, I wanna be Captain Cancer!" Bwaha Ha Ha! Everyone... Ha ha ha.."

Yes, I wanna my body to uncontrollably multiply metastatic mutant cells which let me slowly painfully die strapped to Chemo IVs~!" Kelly-- Yes my granny had Stage four breast cancer... Swift killer, expensive, too...quite the formidable Super Power!." Ha ha ha ha ha! "

HELL NO NOT FUNNY!!! Narcolepsy is NOT a superpower, narcolepsy is NO Joke! Care to substitute Autism for Narcolepsy above? Parkinson's? Alzheimer's? Did not Think so.... You're welcome... as the one the ONLY Sleepy American Saves the Day! Jeremy Renner... KellyandMichael... We are not Laughing!!! Get Narcolepsy Right!

Hey Captain REMmer, Narcolepsy is NOT a Super Power!

Here is my post to @Renner4Real Jeremy Renner Narcolepsy is NOT a super power! Well, of course unless collapsing falls every time you feel emotion, esp. laughter (cataplexy), Conscious Paralysis while trying to sleep (sleep paralysis), or the ever horrifying Hypnagogic Hallucinations are what you are referring to... #CaptianCataplexy #Narcolepsyisnotasuperpower Rem sleep intrudes upon the wakeful hours in the brains of persons with Narcolepsy, Hence Jeremy Renner says he wants to be #CaptainNarcolepsy, I say lets PUN his name... #CaptainRemmer #Captain America

**Cued Link to #Captain Narcolepsy as a Superpower Comment

Narcolepsy Network~ Advocacy is happening, regardless of your involvement! Lots of us PWN united independently unless you step it up... after all, my Web Name and ID is Sleepy American.